Demographics Survey

Demographics Survey

This is the demographics questionnaire that caregivers complete. It collects both one-time background information as well as follow up information detailing any changes or updates that may occur between data collection timepoints. Demographic information may contain questions that are both sensitive for participants and subject to regulatory control due to privacy and other restrictions. Individual sites will collect these data at the site level (outside of the Dashboard) and be able to remove questions that they are unable to ask in their specific context. Further, demographic data will be stored onsite and pre-processed to ensure its compliance with anonymization standards prior to sharing with the LDR.

Notes

Topics include:

• Birthdates
• Race/Ethnicity
• Community of Descent
• Income
• Parent Education
• Languages Spoken/Language Exposure
• Adverse Childhood Experiences
• Sources: ManyBabies Demographics (Singh et al., 2024); Pediatric ACEs and Related Life Events Screener (PEARLS) (Aces Aware, 2024)